Steve McCabe MP shows support for Together for Short Lives and improvements to children’s palliative care

Steve McCabe MP joined the UK’s leading children’s palliative care charity, Together for Short Lives, to discuss their priorities for the next Parliament.

Steve McCabe MP heard Together for Short Lives’ eight priorities for the next Parliament and the steps needed to transform children’s palliative care to significantly improve the lives of children with life-limiting conditions and their families.

Steve McCabe MP said: “Acorns Hospice in my constituency offers vital support for children with life limiting and life threatening conditions and their families, it is really important we support the great work of charities like Acorns by ensuring sustainable and fairly funded children’s palliative care and support which is centred on the needs of children and families.”

Together for Short Lives has developed the priorities for the next Parliament with direct input from young people who need palliative care, as well as their families and the professionals and services that support them.

Together for Short Lives has produced eight priorities for the next Parliament, to transform the way services are developed and commissioned. These are:

- Every child should have access to children’s palliative care in the setting of their or their family’s choice and whenever they need it - 24 hours a day, seven days a week

- Every child - and their family - should have access to palliative care services, including children’s hospices, which are sustainable and fairly funded.

- Every child - and their family - should get a short break if they need one

- Services should be more integrated around the needs of children and their families

-Every young person should have a smooth transition from children’s to adult’s palliative care services

- Services which provide palliative care to children - including children’s hospices - should be regulated fairly and proportionately

- Support to families of children who die with life-threatening or life-limiting conditions should be improved

- Families should receive help from the state to help mitigate the financial impact of caring for a child

 

For more information please visit http://www.togetherforshortlives.org.uk

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